Santa Claus Came to Town!

Santa Claus stopped by to our communities on Christmas to visit the "good" boys and girls...

From all of us here at Caring Places Management, we wish you a Merry Christmas and Happy New Year!

5 Christmas Ideas For Someone With Alzheimer's

All I want for Christmas is...
Still looking for the right gift for a person with Alzheimer's or a related dementia? Here are some ideas that might help.

Welcome Home

The following is a video-slideshow, entitled Welcome Home, that was produced by Carolyn Scherrer-Goldade of our very own Hearthside Manor. We loved it and had to pass it along. Enjoy!

Pattern for Someone with Alzheimers

The following blog post really builds off of thr last article we posted, which discussed trying new approaches with the ones we love who suffer from Alzheimer's. In the article that follows, the author discusses replacing bad patterns with good ones, an idea that we have discussed at length during some of the dementia conferences we've attended. Let's be creative and try to implement some of these ideas. They might not all "stick," but you'll never know if you don't try. 

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Did you ever think to yourself, I wonder if I could replace the "bad" patterns of behavior that are driving me crazy with "new' positive patterns of behavior? I did.

By +Bob DeMarco
+Alzheimer's Reading Room 

Alzheimer's Disease Changing Patterns of Behavior

Did you ever think to yourself, I wonder if I could replace the "bad" patterns of behavior that are driving me crazy with "new' positive patterns of behavior? I did.

I wonder if Alzheimer's caregivers think about patterns of behavior when it comes to caring for someone living with Alzheimer's disease.

Many persons living with dementia evidence patterns of behavior that drive Alzheimer's caregivers "nuts" or worse. 

Did you ever think to yourself, I wonder if I could replace the "bad" patterns with "new and good" patterns of behavior? 

I did.

Patterns.

All Alzheimer's patients evidence patterns of behavior.

Some of the patterns are simple -- like asking over and over what day it is. Others are more complex. One reader told us her husband was shaving four times a day and his face was getting "raw". Others pace. The list goes on and on.

My mother was evidencing all kinds of patterns of behavior -- doing the same crazy things at the same time of day or night -- over and over.

At approximately 9:37 PM, at night,  my mother would get up and announce that she needed to start cleaning the house. I am talking every night.

Imagine trying to explain to someone living with Alzheimer's disease that it is night time and you don't clean at bed time.

I'm not sure how many times I did this, more then I want to remember -- it didn't work.

My mother would wake up at approximately 1:29 AM, get out of bed, open up our front door, take a few steps and look around. After a few minutes she would come back in and get in bed.

Same thing at 4:29 AM. Each and every time, I would get up out of bed, stand back, and watch her do it. I did not intervene. After a year or so I finally started to understand why she was doing this.
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After a year or so of reading research about Alzheimer's disease and dementia, I came to a conclusion -- exercise was the single most important variable in caring for someone with Alzheimer's disease. I enrolled my mother in a gym for the first time when she was 87 years old. At first I put her in the class for seniors -- the Silver Sneakers class. It helped. 

One day when she came out of the class I decided to put her on the treadmill. She resisted, but she did it. 

Then something started happening that changed our lives. 

My mother would start walking on the treadmill and at the 6 minute and 30 second mark she would bend over like she was going to fall. She would grab the side rail on the treadmill and more or less hang over it. Her feet, however, would keep moving. At the seven minute mark she would stand back up, straight, and start walking. This happened every time. It amazed me.
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Patterns of behavior. I came to a conclusion through these observations.

First, most Alzheimer's patients have patterns of behavior -- some good, some bad. Second, most people without Alzheimer's have patterns of behavior -- they do the same kinds of things around the same time of day, over and over.

Patterns of behavior bring homeostasis into our lives. 

Having well defined patterns of behavior brings comfort, organization, and a sense of stability into our lives. The fact that we live a life of patterns also helps explain why most of us don't like change. And, why we resist change.

I thought to myself, what if I could change my mother's bad patterns of behavior and channel her energy into more positive patterns. 

I decided to introduce an entirely new set of behaviors and actions into our lives.

Over time I introduced one new behavior after another until we reached the point where our day was organized in a way that made each day very similar to the one that came before it.

Our day had a very well defined pattern and so did our daily actions and activities. A Pattern.
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Here is a simple example of how it worked.

Instead of waiting for my mother to ask me. "what day is it". Meaning what day of the week. I put the newspaper in front of her each morning and asked her, "what day it is it". Then, what is today's date? She would read this to me from the top of the newspaper.

I also bought a great big clock and put it on the wall right in front of her seat where she couldn't miss it. I also asked what time it is? I did this two or three times a day. It helped cured a couple of her repetitive behaviors.

Over the years I cured my mother of meanness, getting up in the middle of the night, urinary incontinence, and the dreaded bowel movement problem. I did this by introducing new patterns of behavior and news tools into our daily equation. 

Did it work perfectly -- no. But it worked.
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I Tried a New Approach

One of our favorite blogs we follow is the +Alzheimer's Reading Room. Recently, Marilyn Raichle shared a wonderful story about trying a different approach with her mother. We wanted to pass it along. Enjoy!

The Art of Alzheimer's

Mother has some major preoccupations – with two questions that she asks me over and over and over. 

What do I think Seattle will be like in 50 (or 55 or 250 or 500) years?

Do I think that women will begin wearing skirts again instead of pants?

I always answer by taking the question seriously and trying to come up with interesting answers.

This week I tried something new. I turned the table and asked her the questions.

“What do you think Seattle will be like in 50 years?” I ask

“Well, I won’t be here,” she laughs.

“I wonder what it will be like,” I persist
Now she’s interested.

“Well, I think women will be wearing skirts again."

“I don’t’ think there will be any room – the streets will be full with people everywhere.”

“My grandmother would be so amazed.”

“Do you think we will still drive cars?” I ask.

“There won’t be room. Maybe we will all fly.”

“Things change. That just what happens – there is nothing you can do to stop it.”

And then – out of the blue…

“I want to live to be 100.”

I always tell her I want her to live to 100, but this is the first time she has ever expressed that desire herself.

Mom’s family tends to be very long-lived. Since the 1850’s, a surprising number have lived into their mid to late 90’s – announcing when they will die and, right on schedule, doing so.

I’ve always thought that Mom would reach 100 by forgetting to tell herself to die.

But – just perhaps – she will tell herself to keep living.

Hope so.

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By Marilyn Raichle 

+Alzheimer's Reading Room 

+Marilyn Raichle writes The Art of Alzheimer’s – How Mother Forgot Nearly Everything and Began to Paint – a blog about her mother Jean, art and Alzheimer’s. Marilyn also works as an arts management consultant in the Greater Seattle area.

Crowdrise Holiday Challange

This is a great fundraiser that actor Seth Rogan and CrowdRise are helping to facilitate for Alzheimer's Association. Below is a summary of the fundraiser. Here is the official link: http://www.crowdrise.com/sethholiday

BENEFITING: Alzheimer's Association

EVENT: CrowdRise Holiday Challenge

THE STORY:

Everyone who donates at least $25 from 11/18 at 12:00pm ET to 1/9 at 11:59:59am ET will be automatically entered for a chance to win an Outgoing Voicemail Message from me.

There's a thief out there. And it's robbing people's memories. It's robbing their ability to talk. It's robbing their ability to eat, walk, get dressed, shower, or recognize their loved ones. It's robbing people of their ability to be humans. It's called Alzheimer's, and we've got to do something about it. And we've got to do something now. 

You all rock my world! Thanks!

Seth

PS – Curious about the Hilarity For Charity? HFC takes a new approach to fighting a terrible disease by raising funds and awareness among the millennial generation. All monies raised through Hilarity for Charity help families struggling with Alzheimer’s care today, increase support groups nationwide and fund cutting edge research through the Alzheimer’s Association.

Did you know: 

Today more than 5 million Americans are living with Alzheimer’sdisease. And they’re not all old and gray. People are developing Alzheimer's in their 30's, 40's, and 50's. 

The CrowdRise Holiday Challenge is donating $100,000 to the charity that raises the most money. I started my own charity fund, Hilarity for Charity, benefiting the Alzheimer’s Association and we could really use that money!

Another American develops Alzheimer’s disease every 68 seconds.

By 2050, as many as 16 million Americans will have the disease and an American will develop the disease every 33 seconds. (how old will you be in 2050?)

Alzheimer’s disease is the 6th leading cause of death in the United States.

Alzheimer’s is the only cause of death among the top 10 in America without a way to prevent, cure, or even slow its progression. The ONLY one.

Happy Thanksgiving

We hope everyone had a safe and fun Thanksgiving weekend and ate LOTS of turkey (gobble gobble)!

Here are some pictures from our celebrations -